Meet 3 people whose stories highlight the realities of living with this condition
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Alisa Worley
Diagnosed with epilepsy at the age of two, Alisa has spent a lifetime navigating the challenges of living with refractory epilepsy while constantly finding ways to adapt and progress. Today, she combines her personal experience with her professional role as a Lead Epilepsy Specialist Nurse to support others living with the condition.
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The B. family
Helen shares her family’s experience of caring for her son, whose refractory epilepsy has transformed every aspect of family life since his diagnosis as a young child. Her story reflects the resilience, difficult decisions and hope that come with caring for a child with complex epilepsy.
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Chris and Lisa Marie
After developing drug-resistant epilepsy in his early twenties, Chris’ life changed dramatically, affecting his independence, career and daily routine. Chris shares a powerful story of strength as he remains warm, upbeat, and determined to make the most of what he has.
